New England Retinoblastoma Support Group
Provides emotional support and resources for families with retinoblastoma. Information and referral, phone support,
conferences, literature, advocacy.
Address: New England Retinoblastoma Parents Support Group, P.O. Box 317, Watertown, MA 02272
American Cancer Society
Health information, coping with cancer, new treatment and research, discussion groups, locate resources in your
Children's Cancer Association
Visit this site and request a copy of The Kids Cancer Pages. It is a comprehensive national resource directory on
childhood cancer. It was created to help connect and network families to organizations, information, resources, and
to each other on a national basis.
National Cancer Institute
The U.S. Government's primary agency for cancer research and information.
Young People With Cancer
This book provides parents with information on the most common types of cancer, treatments and side effects and
common issues that arise when a child is diagnosed with cancer.
Phone: 1-800-4-CANCER (1-800-422-6237) and select the option to order publications Monday through Friday, 9:00 a.m.
to 4:30 p.m. local time (within the U.S. and its territories).
The National Children's Cancer Society
Provides information, emotional and financial support to children with cancer and their families for expenses
related to cancer treatment. The website has special links just for kids and information on healthy caregiving for
Eye Cancer Network
Educational, diagnostic and treatment information about ocular cancers.
Band-Aids and Blackboards
A website about growing up with a medical problem from the perspective of kids and teens.
National Eye Institute
The U.S. Government agency conducts and supports research to help prevent and treat eye diseases. The website
provides health information in English and Spanish.
Childhood Cancer Survivors; A Practical Guide to Your Future
Childhood Cancer: A Parent's Guide to Solid Tumor Cancers
Books written to give survivors and their families the information they need.
Candlelighter's Childhood Cancer Foundation
A national non-profit membership organization whose mission is to educate, support, serve, and advocate for families
of children with cancer, survivors of childhood cancer, and the professionals who care for them.
Visual Impairment Resources
Visually impairment can be described as partially sighted, low vision, hard-of-seeing, or blind
based on the degree of visual impairment. A person is considered LEGALLY blind when the best-corrected visual acuity
is 20/200, or the person's visual field is 20 degrees or less. Few legally blind persons have no sight; in fact, most
have some remaining vision. Partially sighted or low vision generally refers to a severe visual impairment, not
necessarily limited to distance vision. Low vision applies to all individuals with sight who are unable to read the
newspaper at a normal viewing distance, even with the aid of eyeglasses or contact lenses. They use a combination of
vision and other senses to learn, although they may require adaptations in lighting or the size of print, and,
sometimes, Braille. Generally, the partially sighted individual has a central visual acuity range of 20/70 to
20/200 in the better eye with best correction by glasses.
Florida Division of Blind Services (DBS)
This state agency provides vocational rehabilitation and employment services for blind and visually impaired Florida
residents. Services include school to work transition, job placement, counseling, vocational and academic training,
orientation and mobility training, personal and social adjustments services and post-employment services. A part of
DBS, the Florida Department of Education specialists from Children and Family Services serve eligible children who
are blind or visually impaired so that they may reach educational and independent living goals.
National Association for Parents of Children with Visual Impairments (NAPVI)
A national non-profit organization that enables parents to find information and resources for their children who are
blind or visually impaired. NAPVI offers information and referral services, initiates outreach by providing seed
money to promotes the development of state and local organizations, has a quarterly publication, advocates for
educational needs, and offers emotional support and networking opportunities.
An Internet site that contains information on topics is pertaining to parenting and teaching children with a visual
impairment. Information and links to other sites about vision-related services, special education, assistive
technology and products, laws and legislation, entertainment, research, and other organizations and groups that
might be of interest.
The Hadley School for the Blind
The Hadley School offers Parent/Child and Parent/Family correspondence courses on a variety of topics. Parent/Child
courses include: Reach and Teach, which provides step-by-step teaching techniques and guideline to help parents
assess and build on a child's strengths; Child Development; Partners in Education; Learning, Play, and Toys; and
Early Independence. Parent/Family course topics include Abacus I and II; Accessing Local Sports and Recreation;
Braille Reading for Family members, College Bound, the Human Eye; Independent Living; Personal Computers; self-esteem.
Blind Children's Center
This Los Angeles organization has a number of videos and publications (some in Spanish) that can provide useful
information for families of blind or visually impaired children. Topics include: beginning nurturing, social, play
and language interactions; teaching young children who are visually impaired; common concerns for the preschool child
who is visually impaired or blind; feeding a child with a visual impairment; movement development for babies who are
visually impaired; orientation and mobility for preschool children designing and constructing simple adaptive
mobility devices for preschool children; multiple disabilities; and parents talk about their feelings.
American Council of the Blind
American Federation for the Blind
American Printing House for the Blind
National Federation of the Blind
Links to Other Websites
Eye Resources on the Internet
International Organization for the Blind
Blindness Resource Center
A Blind Net
Snuggl' Up, Inc
SNG Prosthetic Eye Institute
Angel Flight is a non-profit, volunteer pilot organization that coordinates free air transportation on corporate
aircraft for those with medical needs.
Midwest Express Miracle Miles
One free flight, thereafter flights are discounted. No financial requirements.
Phone: Call Natalie Fuerst at 1-414-570-3644
Private jets used by corporations that have empty seats, free flights. No financial requirements.
Northwest Airlines, Kid Cares Program
Those with financial need have priority.
American Airlines, Aadvantage Miles for Kids in Need
Helps those in financial need.
Phone: 1-817-963- 8118
The National Patient Travel HELPLINE
Helps those in financial need.
American Cancer Society's Winn-Dixie Hope Lodge
The American Cancer Society understands the challenges that families face when a loved one needs cancer treatment
far from home. It can be uncomfortable and extremely costly to stay in hotels for weeks at a time. That's where Hope
Lodge can help. It offers a friendly environment with no limit on the length of stay. Hope Lodge provides several
kitchen areas where families can cook their own meals. While Hope Lodge does not provide medical, counseling, or
religious services, it is far more than a hotel. It's a home-away-from-home when it's needed most.
Phone: 1-800-ACS-2345; In Miami: 305-547-2210; Other areas: 1-317-415-5000
Ronald McDonald House
Since 1974, families around the world have been calling Ronald McDonald House a "home-away-from-home."
Address: Ronald McDonald House Charities, One Kroc Drive, Oak Brook, Illinois, 60523